Zanes Run

4th Annual ZANES RUN!  www.zanesrun.com  Sun 09/30/2012 9:00 AM - 11:00 AM Sugartown Elementary SchoolSunday, September 30, 2012........(1m (kids walk/fun run), 5K and 5mile).  It's been 3 years and 2.5 months since we lost my niece Zane to SMA (Spinal Muscular Atrophy).   I am so proud of my friends and family who started this run in her memory. The Run grows each year and last year we had over 450+ participants! This year promises to be even more fun as we continue to work effortlessly in her memory. We'd love to have you join us. Head to http://www.zanesrun.com/ for registration. xoxo - Aunt Kristen

If you have any questions please contact Kristen Kearns at (610)639-1309 or zanesrun@gmail.com.  For more information on Zanes story, go to www.SweetBabyZane.com 

Zane's Run was started in 2009 in memory of Zane Schmid, the beautiful baby daughter of Keith and Hillary Schmid. Participants can choose to run/walk a one mile, 5k or 5 mile scenic course through beautiful Chester County, Pennsylvania. All proceeds from the event are donated directly to FSMA. For more information please visit zanesrun.com.Early Registration ends on 9/10. Make sure to register before then to recieve the discounted registrated prices.Starting on 9/11 prices will be:Adult: $30 (T-shirt not guaranteed)Seniors/Students: $25 (T-shirt not guaranteed)Kids 12 & Under: $20 (Medal Included)Spinal Muscular Atrophy is the number one genetic killer of children under the age of two. SMA is an inherited and often fatal disease that destroys the nerves controlling voluntary muscle movement, which affects crawling, walking, head and neck control, and even swallowing. Two new-born children are affected each day in the United States, approximately 1 in 6,000 live births. One in every 40 people carries the gene that causes SMA, which means there are more than seven million carriers in the United States alone. Currently there is no treatment or cure. Families of SMA is an international nonprofit organization founded in 1984 with the mission to find a treatment and cure for SMA. FSMA is made up of more than 85,000 members and supporters and has funded more than $53 Million in leading research programs since its inception.Click here to learn more about Families of SMA and our programs.  To register go to www.zanesrun.com